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Parents fear being left behind in screening for rare condition after Jesy Nelson campaign - BBCBBC · Sun, 09 Aug 2026 20:58:43 GMTMinutes published of UK NSC June 2026 meeting – UK National Screening Committee - GOV.UK blogsGOV.UK blogs · Thu, 06 Aug 2026 08:44:03 GMTApproved work: NHS screening programmes: Evidence and decision-making - UK ParliamentUK Parliament · Tue, 28 Jul 2026 15:58:45 GMT