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Local family fundraising to support gene therapy research for baby’s rare condition - FlamboroughToday.comFlamboroughToday.com · Sat, 08 Aug 2026 14:16:10 GMTCongressional Panel Says the United States Is Losing Its Lead on Rare Disease Cures - Medical DailyMedical Daily · Sat, 08 Aug 2026 03:30:41 GMTGene-Editing Startup Scraps Lead Program Seven Months After Launch and Cuts Staff - Medical DailyMedical Daily · Sat, 08 Aug 2026 02:30:07 GMTBioMarin axes $270M rare disease asset after missing phase 3 endpoint - Fierce BiotechFierce Biotech · Fri, 07 Aug 2026 13:10:41 GMTCalifornia boy with rare disorder gets unforgettable birthday surprise from basketball community - CBS NewsCBS News · Fri, 07 Aug 2026 06:27:51 GMTNo fixes yet for costly rare disease drug program, one year after David Eby called for changes - Vancouver SunVancouver Sun · Thu, 06 Aug 2026 13:09:35 GMTCall for Improving Health Outcomes for Individuals with IDD and Rare Diseases (US) - fundsforNGOsfundsforNGOs · Thu, 06 Aug 2026 06:32:03 GMTAn Akron mother’s search for answers after her daughter’s rare disease diagnosis - Signal AkronSignal Akron · Thu, 06 Aug 2026 04:05:00 GMT